When it comes to rebelliousness, I'm a late bloomer. Most folks "sow their wild oats" in high school; a few do it in college. Me? I waited until I was in my 30s and had 3 kids.
I understand why rules exists, I just don't always believe they should apply to me. Yes, some rules are made for the protection of the public and should always be followed (kids in car seats, for example). Other rules, however, are made to punish the majority because of a minority fringe (hair cut guidelines in schools: because there are a handful of parents who would let their kids wear purple 3-foot mohawks, there must be a line drawn, and the school board arbitrarily picked that line to be above the eyebrows and the shirt collar).
I believe - right or wrong - that there is an exception to every rule. Now, I'm not talking about Biblical Truths, so don't go gettin' wadded up over a theological issue. I very much believe in absolute Truth when it comes to the Bible. When it comes to schools, companies and other earthly institutions, however, it's a different story.
Problem is that this idea was cemented in my mind whenever Paul was going through treatment. There were so many "Nevers" and "No ones" and "No Exception" policies that we blatantly ignored, that we began to believe that, as parents, WE were the ones who made the rules. The truth is that when your child is dying, there are no rules and you are willing to confront anyone who dares to tell you otherwise.
I remember my inaugural defiant act against authority. Paul had just been diagnosed, and he was having an abdominal CT done at Cook. This requires something called contrast to be mixed with clear liquid and then a certain amount taken over about a 2 hour period. They handed us his sippy cup full of contrast and told us to be back in 45 minutes for his next round. Well, on the second round of contrast, with only 15 minutes remaining, I found myself in a small waiting room with a VERY water-logged 2-year-old who was quite done with his sippy cup. The nurse kept returning to the room, holding up the sippy cup and disapprovingly looking at me. You know, like I had some power, some magical words that would make my sweet and obedient boy drink the last 6 ounces. I had just spent the last hour and a half using every bribe, threat and game I could think of to get the stuff down him. At this point, he was completely ignoring me and the cup. Of course, we were told, he absolutely HAD to drink that contrast. If he didn't, they would cancel the CT, and we'd have to come back and repeat the test another time (like some other day when he was incredibly thirsty or I had improved my mothering skills).
Well, I was not about to waste the amount of time we'd already spent in the hospital. I was determined that we would have that CT on that day. In an act of fierce protection of my son, I turned to the only other person in the waiting room (another mom) and said to her, "Not a word to anyone!" With that, I lifted that cup to my lips and guzzled the last ounces of contrast. It is one of my proudest moments as a mom! Paul was oblivious (he was busy watching the fish in the aquarium), but I was triumphant! The nurse returned, I held up the empty cup, she smiled and escorted us back to radiation.
And thus began my love of rule-breaking. It's something that I'm actually quite proud of. I'm just trying to figure out how NOT to pass it on to my kids!
7 comments:
WHY are we friends?
Sorry, I couldn't resist. Too easy. : )
Leigh,
What a wonderful mom you are! God gives us what I call, the "Mother Bear" gene. When our children are diagnosed with cancer, we will do anything, because we love them so much. I never drank contrast, though! That's just too funny! I can just picture you putting that sippy cup to your lips...
One moment of rebellion I am proud of is a visit to the clinic later in treatment when Josh was actually feeling half way decent. He wasn't throwing up, he wasn't just lying on the examining table with his eyes closed, he didn't have the ng tube taped to his face, he actually had energy. And he began to roll around on the wheeled doctor's stool while we were waiting for the nurse practitioner. I got so excited I opened the door and actually encouraged him to wheel up and down the hallway! He was laughing and squealing. I was laughing...then the nurse walked in and was just about to scold him and me. I let her know I had given him permission and said something like..."Isn't it great to see him finally feeling well?" She quickly closed her mouth. The next time we went to clinic and every single time since, Josh and I smile at eachother because there is a bold, large print sign in every examining room and in the hallway that says: "DO NOT ALLOW YOUR CHILDREN TO PLAY ON THE WHEELED STOOLS!"
I pray for you often...
Leigh, your a wonderful mom. I admit I didn't think you had a rebellious bone in your body. I love it!! Nana
That is one of my favorite posts ever.
That is why I love you Leigh!
You go girl! I busted out laughing when I read your post. I wish I had thought of that trick myself. I hated those "looks" the techs gave me when I wasn't getting Anna to drink enough contrast.
Props to you for rebelliousness! (In a good way, of course....)
For some reason, I've often thought of that New Year's Eve karaoke party we had with THG years ago.... and you stayed until 2 a.m..... and I decided right then that I wanted to be a mom like you.
Instead, I'm a mom who is on the computer at 1 a.m. with no karaoke in sight.
Love y'all!
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